Addressing Multiple Sclerosis in Communities of Color

Martin M.S. Alliance Foundation


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facesofms@gmail.com

M.S. In Communities Of Color

o Why This is Important:  
AMA Apologizes to Black Doctors for Past Racism

July 11th, 2008 • By LINDSEY TANNER AP Medical Writer​
Transplant surgeon Clive Calendar has hurtful memories of being the only black doctor at medical meetings in the 1970s, met with stark silence when he pleaded for better access to transplant organs for blacks. So when the American Medical Association formally apologized Thursday for more than a century of policies [...]

“Who are the People with Multiple Sclerosis?” 
“We are your parents, your children, your brothers and sisters; we are the person down the street; we are that lady or fellow who may walk a little "funny" at the grocery store. - We are the face of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country, (M.S.) does not discriminate by social standing or class or financial or educational background or language or religion. -We are brave. We are fragile. We want to live, and we want to end it all. We look for support and we want to stand alone. We are every person. We are the People with Multiple Sclerosis. We are People, Just Like You....” - Virginia Sanchez

Black Women’s Health Imperative Celebrates 25 Years June 18th, 2008 • 
The Black Women’s Health Imperative (Imperative) will celebrate 25 years of creating a lasting legacy of well-being for African American women during its three-day anniversary celebration, “Reflect, Rejoice, Renew: Celebrating 25 Years of Promoting Health and Well-Being for Black Women,” June 19-21, 2008, in Washington, D.C. More than 1,500 Black women and their families, health and [...]

What do we know about M.S. in Africans, Asians, Hispanics, African-Americans - very little • 
How many people of color have M.S.? • 
How many people of color are diagnosed with M.S. each year? • 
How many studies have been done on M.S. in communities of color? • 
How many African-Americans, Hispanics, Native Americans, People of Asian, Pacifica Islander, decent etc… have M.S. and does their genetic heritage create a difference in the way the disease manifests itself, in the ways the medication works.• 


These are just some of the questions the Martin M.S. Alliance Foundation is working to answer as a main stay of our mission. 

Supporting efforts to improve the accuracy of statistics reflecting the number of people of color affected by M.S. Several days of research and we have come to the conclusion that these questions have yet to be addressed.  

The included are some what we were able to find are only the tip of an iceberg of questions that need to be addressed in order to create proper treatments and find a cure 

All studies can obtained from - PubMed – A Service of National Library of Medicine and the Natural Institutes of Health www.PubMed.com  indexed for MEDLINE http://www.ncbi.nlm.nih.gov/entrez/query

o KOLB LC. The Social Significance of Multiple Sclerosis. Res Publ Assoc Res Nerv Ment Dis. 1950;28:28–43.

o Weinshenker BG, Bass B, Rice GP, Noseworthy J, Carriere W, Baskerville J, Ebers GC. The natural history of multiple sclerosis: a geographically based study.

I. Clinical course and disability. Brain. 1989 Feb;112 (:133–146.)

Demographics of pediatric-onset Multiple Sclerosis in an MS center population from the Northeastern United States. Chitnis T, Glanz B, Jaffin S, Healy B. Mult Scler. 2009 May;15(5):627-31. Epub 2009 Mar 19.PMID: 19299440 [PubMed - indexed for MEDLINE]

Comorbidity, socioeconomic status and multiple sclerosis. Marrie R, Horwitz R, Cutter G, Tyry T, Campagnolo D, Vollmer T. Mult Scler. 2008 Sep;14(8):1091-8.PMID: 18728060 [PubMed - indexed for MEDLINE]Related articles

Access to and utilization of neurologists by people with Multiple Sclerosis. Minden SL, Hoaglin DC, Hadden L, Frankel D, Robbins T, Perloff J.Neurology. 2008 Mar 25;70(13 Pt 2):1141-9.PMID: 18362274 [PubMed - indexed for MEDLINE]

Does Multiple Sclerosis-associated disability differ between races? Marrie RA, Cutter G Tyry T, Vollmer T, Campagnolo D.Neurology. 2006 Apr 25;66(8):1235-40.PMID: 16636241 [PubMed - indexed for MEDLINE]

Racial analyses of longer-stay nursing home residents with Multiple Sclerosis. Buchanan RJ, Martin RA, Wang S, Kim M. Ethn Dis. 2006 Winter;16(1):159-65.PMID: 16599365 [PubMed - indexed for MEDLINE]

Multiple Sclerosis management for low-income minorities. Shabas D, Heffner M. Mult Scler. 2005 Dec;11(6):635-40.PMID: 16320721 [PubMed - indexed for MEDLINE]

o Kurtzke JF, Beebe GW, Norman JE Jr. Epidemiology of Multiple Sclerosis in U.S. veterans: 1. Race, sex, and geographic distribution. Neurology. 1979 Sep;29(9 Pt 1):1228–1235. [PubMed]